Researcher Subjects: Gaining Access and Building Trust in an Online Breast Cancer Support Group

Rubenstein, Ellen L.

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https://hdl.handle.net/2142/15023 Copy

Description

Title

Researcher Subjects: Gaining Access and Building Trust in an Online Breast Cancer Support Group

Author(s)

Rubenstein, Ellen L.

Issue Date

2010-02-03

Keyword(s)

• Online Communities
• Health Informatics
• Online Ethnography

Abstract

This poster presents an analysis of some of the challenges in gaining access and building trust in an online breast cancer support group. Although the group itself is not a closed group and is freely available on the Internet, divergent participant beliefs about privacy and public access to this website, as well as conceptions of research methods and ethical concerns, offer provocative insights into the perceptions online participants have about research, the role of researchers, and the juxtaposition of researchers and subjects within the context of this particular online community.

Type of Resource

text

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http://hdl.handle.net/2142/15023

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