Using data journeys to inform research design: Socio-cultural dynamics of patient data flows in the UK healthcare sector

Medina Perea, Itzelle Aurora; Bates, Jo; Cox, Andrew

Permalink

https://hdl.handle.net/2142/103339 Copy

Description

Title

Using data journeys to inform research design: Socio-cultural dynamics of patient data flows in the UK healthcare sector

Author(s)

• Medina Perea, Itzelle Aurora
• Bates, Jo
• Cox, Andrew

Issue Date

2019-03-15

Keyword(s)

• Data flows
• Personal patient data
• Heatlhcare sector
• Data sharing

Abstract

"The uses of personal patient data collected in the healthcare is a growing concern for the society as it can raise serious issues of privacy and power. Currently there is little known about how social and cultural dynamics shaping health data flows between different sites of practice. This research examines socio-cultural dynamics shaping the journey of selected types of personal patient data produced within the UK healthcare sector, from the initial creation of the data through to its re-use for secondary purposes in different contexts. Data Journeys approach is used to inform the research design of this study. This research intends to generate knowledge about the ways in which socio-cultural factors influence the movement of patient data, and consider what this means for how data flows bring patients into different forms of relation with other social actors. The aim is to develop recommendations for implementing ""just"" practices in data sharing and make patient data flows more clear and transparent. This poster describes how Data Journeys is used to inform the research design of this study and reports preliminary findings."

Publisher

iSchools

Series/Report Name or Number

iConference 2019 Proceedings

Type of Resource

text

Language

eng

Permalink

http://hdl.handle.net/2142/103339

DOI

https://doi.org/10.21900/iconf.2019.103339

Copyright and License Information

Copyright 2019 Itzelle Aurora Medina Perea, Jo Bates, and Andrew Cox

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